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Ataxia-Telangiectasia Society

Contact Mrs Kay Atkins, Family Support Worker

IACR-Rothamsted
Harpenden
Herts
AL5 2JQ
Phone: 01582 760733
Fax: 01582 760162
email: atsociety@btconnect.com

Web pages: www.atsociety.org.uk

Summary Also known as A-T Society

Ataxia Telangiectasia is a rare inherited and progressive disease. It is a complex disease and has connections with cancer and immuno-deficiencies.

This society is a charity which is nationally based and open to A-T sufferers, their families and interested friends. It aims to relieve the suffering that A-T causes. It funds research, has 2 special clinics and a counsellor, offers information and a newsletter and holds meetings on a national basis.

Affiliated to: Association of Medical Research Charities, Contact a Family and Genetic Interest Group.

Date of AGM: May

Publications:
Newsletter twice yearly.
Viedo: What is A-T? A Guide for Health Professionals.
'Ataxia-Telangiectasia'
'What is A-T'
'A-T: A Guide for Parents'
'A-T: A Guide for Teachers'
'A Guide to the National A-T Clinic'
'A-T: A Guide to Therapies'
'A-T: A Guide to the Genetics of A-T and Pre-natal Testing'.

Registered charity number 1105528

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